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Thread: Adelina Sotnikova's Sister

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    Adelina Sotnikova's Sister

    I heard that Adelina had to win the Olympic Gold to pay for her sister's health fees. Are these rumors true?

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    Say no to horrendous costumes Meoima's Avatar
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    Sotnikova, second at the European Championships the past two years, feels a responsibility to help pay for her younger sister Maria's extensive surgical and medical bills, according to Russian journalist Elena Vaytsekhovskaya. Maria Sotnikova has Treacher Collins Syndrome, a congenital disorder causing facial and cranial deformities.
    From
    http://www.thespec.com/sports-story/...ova-is-golden/

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    Wicked Yankee Girl dorispulaski's Avatar
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    Last edited by dorispulaski; 03-20-2014 at 01:45 AM.

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    What kind of treatment does she need?

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    Wicked Yankee Girl dorispulaski's Avatar
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    Extensive cosmetic surgery.

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    Size 7 Knife Boots Sam-Skwantch's Avatar
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    Quote Originally Posted by volk View Post
    What kind of treatment does she need?
    Treacher-Collins syndrome Symptoms

    Outer part of the ears are abnormal or almost completely missing
    Hearing loss
    Very small jaw (micrognathia)
    Very large mouth
    Defect in the lower eyelid (coloboma)
    Scalp hair that reaches to the cheeks
    Cleft palate
    Tests and Exams

    The child usually will show normal intelligence. Examination of the infant may reveal a variety of problems, including:

    Abnormal eye shape
    Flat cheekbones
    Clefts in the face
    Small jaw
    Low-set ears
    Abnormally formed ears
    Abnormal ear canal
    Hearing loss
    Defects in the eye (coloboma that extends into the lower lid)
    Decreased eyelashes on the lower eyelid
    Genetic tests can help identify gene changes linked to this condition.

    Treatment of Treacher-Collins syndrome

    Hearing loss is treated to ensure better performance in school.

    A good plastic surgeon is very important, because children with this condition sometimes need a series of operations to correct birth defects. Plastic surgery can correct the receding chin and other changes in face structure.

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    I googled the "Treacher Collins syndrome", it is terrible. God bless her.

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    Very sad. What a burden for a 17 year old to carry. I am glad she won the Gold Medal as that will help a lot with her sister's expenses.

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    I hope her sister can get better now that she has money for the surgery

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    In search of a summer sport to love <3 desertskates's Avatar
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    What a heartbreaking situation. I wish the best for the family as they move forward.

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    Those congenital malformations are dreadful, because they are often so complex--and of course they are so visible. Quite a burden on the child herself to face the world with such distinctive features. I am glad that Adelina can help, and if the gold medal gives her an advantage financially, then things turned out as they needed to. Unfortunately, I suspect that there isn't a lot of sophisticated care for rare syndromes such as this in Russia, but if needed maybe she can be seen in Germany or Switzerland at some point. Or Israel, as Plushenko was.

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    What a heartbreaking situation, but it's also a love story. What a wonderful reason to want to win gold. I hope they're able to get her all the help she needs. I feel if this gained some steam here in the U.S. there would be doctors and hospitals willing to help.

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    Wicked Yankee Girl dorispulaski's Avatar
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    If there is cleft palate involved, Operation Smile deals with this kind of deformity.

    http://www.operationsmile.org/

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    This is from one of the last articles about Adelina (she is talking about her sister ).
    “Everybody knows I have a sister, we have two years difference, and she is exceptional. She is a very nice person, I don’t want to exaggerate, but she had to overcame a lot in her life. She is able to hear with the help of a special devise, and she wouldn’t have spoken if my mother hadn’t encouraged her. She had a few surgery already. I don’t have right to be poor-spirited. I think my sister is stronger than me. It seems I wouldn’t have born she had survived. Everything we are doing doesn’t seems on the top of everything. I think sometimes – if she had done my sport, she would have overthrew everything on her way. She is very smart. She has great communications skills, she learns well, she is in the strongest class at school. She dances, draws really well, yet nobody taught her.. “
    Her family has very modest income. They have a small apartment in suburb of Moscow very far from her club, and Adelina’s club rents a very small apartment for her nearby. All money she received for her gold medal won’t let her to buy the cheapest 3-rooms apartment in the centre of Moscow.

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    Quote Originally Posted by dorispulaski View Post
    If there is cleft palate involved, Operation Smile deals with this kind of deformity.

    http://www.operationsmile.org/
    There is cleft palate but based on the info in earlier posts, it sounds like it's much more complicated. Maybe if Operation Smile gets involved, they can get the family connected with surgeons who can help with other aspects of the condition. I hope so -- it's such a terrible burden on so many levels!

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