I need some help

[RafaelAstro]

Hi I don't really know why I have the need to post this but this is about my health.

Since more than a year and a half I have been dealing with many simptoms in my body that have been getting worse with time. The most relevant being muscle weakness wich creates hard times at eating, speaking, using arms and legs, loss of muscular tone, weight and other problems, I did many health studies and went to many specialist in order to find if something what's wrong with me but after all this time they have not discovered something on me, many thinks it has to do with anxiety and depression but I don't really think so, terapy have not been helped me, I really feel so lost, sad and with so much fear, It's getting worse with time and I don't see any improvement, I try to be as strong as posible but I really feel that I'm giving up and that I don't have so much time left before something really bad happens to me, I know you can't really do much for me but I would like to read your comments about this, because the worst feeling about all of this is to feel alone, I'm just 24 years old and my mother as well as my grandmother passed away two years ago due to covid

 

[el henry]

@RafaelAstro I am sorry to see you facing so many health challenges and hope that you can find a resolution and a way back to health soon.

Also please accept my sympathies on the loss of your mother and grandmother. They will live on in your heart, but that doesn’t lessen the pain of losing them.

I hope that in some small way watching and writing about skating may bring you some diversion and peace.

 

[RafaelAstro]

Watching figure skating is one of the few things that I still enjoy after what I have been trough and I get so emotional when skaters having hard times in their lifes do what they love and get recognition for that, it's like an inspiration for me to keep fighting

 

[TallyT]

Given the great trauma of losing your mother and grandmother as you did, I can understand how your health problems are compounded by anxiety and depression... and grief. You are dealing with so much, at such a young age.

My deepest sympathy, and hope that you can find some solace and even escape in following and enjoying skaters and whatever else you find to love and that health and light is restored to you.

 

[Alex D]

My condolences,

what you describe sounds familiar, including the doctors being kind of useless. I am not a doctor or nurse, but I want to give you maybe a bit of help in regards of your weight and eating disorder.

Did you ever count kalories? I would advice you to try and do this for a few days and if the result is below 2000, I would advice that you look for something that is called "weight gainer". I would give you an amazon link, but I am not sure if this would be allowed.

Those weight gainers can be a big help if you are in danger of going down with your weight to a BMI of less than 18,5. At your age an BMI of 19-24 should be considered (normal). They also supply your body with various amino acids and minerals, I take them 3 times a day with milk, but you can also take them with water or even juice. Those with no sugar added are best and if you struggle with eating, you may still be able to drink by using a drinking straw.

You can measure your BMI on various tools, the canadian diabetes website has one for instance. As for counting calories, there are apps for smartphones that are free, but sometimes hospitals also hand them out if you were stationary. You just add everything, from drinks, food and snacks.

Usually a doctor will check you out first and tell you exactly how many calories you need, but the average is between 2000 and 2500 for healthy individuals, up to 4000 or more for those with cancer and similar deseases.

As for the menthal health situation of yours,

trauma therapies can at first cause set backs and sometimes it is adviced to go to a daily clinic. They will help with food and you also do a lot of excercises there with others. For some people this is great, for others its not. So if one therapist cant help, others may, I felt clinics in mountains are great, nature is really great at healing menthal scars.

Did your doctors check you for "Epstein Bar" or "fatique syndrome"? Those can contribute to the symptoms you are describing and are triggered by stress or viral infection.


I understand that everything seems hopeless, but always think about the day when you have won this fight. Just imagine how happy you would be if your body and mind are healthy again. This has always helped me, to imagine that day when all pain is gone, the body is working again and you can do what you love most.

Even if it takes months or years, this moment is a goal and maybe you can compare it to a figure skater missing out on the gold, coming back 8 years later and finally winning it. That moment of victory either over an illness or some other obstacles is worth more than anything in life.

Please dont give up!

 

[elbkup]

Such wonderful thoughts, practical advice and strong encouragement sent your way in the posts here. Try to take everything good and positive to heart and use all that you find most helpful to build positive structure to counterbalance the losses you have endured in your young life. Because, you know, everything is about balance; adversity, struggle is a part of living and we humans have the gift of ability to counterbalance adversity with those things we love in life.. these differ in each person .. you must find those loves in your life strong enough to balance the loss you feel with joy.

I share your love of skating and it has helped me through many rough patches in my life; I am more than 50 years older than you and had surgery last summer with a difficult recovery where I had to learn to walk again (still working on it!) But skating was one place I could go to forget myself for a while and emerge with renewed will to push forward and heal. But there are other loves in my life that get me through hard times. For example, I have three dogs, two are old and blind but warm, loving, and appreciate the care and affection we share. The third pup is young, kinda crazy snd makes me laugh every day. Music helps a lot too. Healing takes time.
All my very best ..