skating with lyme
I am a figure skater. I started almost 2 years ago. I have had lyme disease for 2 and a half years. I started skating in order to make myself feel better. I am now working on landing axel and double loop
Just thought you guys could watch these videos, they really hit spot on what is wrong with me, and maybe if you have friends or family with some of the same symptoms you can tell them to get tested. It seems like everybody knows somebody who has had lyme. The serious threat occurs if you are infected with lyme and you do not catch it within a week or two. In my case, it took two years. In another woman's case, 22 years. I know someone who has had lyme 4 times, but is fine because each time she caught it within a day or two and was fine.
http://www.youtube.com/watch?v=em9OeiLkHUQ - this is a video I made a while back.
these will give you more information if you're interested.
http://youtube.com/watch?v=mpB287Yx9iQ -this one especially I can completely relate.
http://youtube.com/watch?v=-5C83YS1LLE
http://youtube.com/watch?v=cCB6ezBzSMY
please. get the word out. I don't want anyone else to end up like me. This is something that I have to live with every single day, so I am extremely passionate about keeping people from being sick like me, so sick that sometimes I can randomly not walk. Like now.
just a few of the many symptoms could be:
Another problem is testing. some labs will say you tested negative, when you really could be positive, if you have less than 5 lyme bands react. I had 2 and it was negative the first time, and a year later, at the right lab, it was definitely positive.
And the sad thing is, all of these extreme cases, could have been prevented, had there been more knowledge of the disease, and had the testing sites actually told the truth about the results.
to find a lyme literate doctor (LLMD) go here: http://flash.lymenet.org/ubb/ultimatebb.php?ubb=forum;f=2 there is also lots more information on there too.
My Story:
I was 14 when I started high school in September of 2005. I had just gotten my braces on, was a goalie on the soccer team and I was getting top grades, straight As. However, on December 16, 2005, I was in the middle of watching a movie with my friend when I got a very painful headache. I tried to ignore it but the pain was so bad, so my friend went home and I went to sleep, hoping it would be gone in the morning. It wasn’t. After a week of head pain so bad that I could not concentrate in class, or even do my homework, we went to the doctor and he gave me a shot of Cortisone. That made it worse. In January 2006, my mother took me to a neurologist. I had all sorts of tests taken and they could not find anything wrong with me.
They put me on some medication and said I would be better in 6 weeks. I wasn’t. I started figure skating in April as a way to escape from my pain. I have gotten pretty good, but it’s hard when you have no energy to jump and spin. It is so therapeutic though, and I love it. Anyway, we saw a head and facial pain specialist who thought he had found the cause of my problems. I had to get my braces taken off (not a fun occasion) in order for them to be able to do the therapy. After a year, he injected my facial tendons 12 times over two weeks. Eight outside my mouth and four inside, he said that 99% of the time it made everything better. It didn’t. It made my headache even more painful than it had
been.
For a year and a half my grades went from As to Cs, I had to quit soccer and we had no idea what was wrong with me. By chance one day in May, my mom bumped into one of her friends and was telling her about my symptoms. The friend that was with her interrupted and told her that all of my symptoms sounded like Lyme disease. She had lived with it for 10 years. I had been tested for lyme in 2006, but it came back negative so we had dismissed that possibility. The friend said that most labs will tell you it is negative if you don’t have at least five lyme bands react, but you can have it if you only have one react. She said to get a copy of the results and check, and I had two that reacted. So we made an appointment with a doctor whose office was coincidently only 10 minutes away from our house. She ran a whole bunch of tests in order to rule anything out, and sure enough, I was definitely positive for lyme. This was in June 2007. I started oral antibiotics and took those for 2 months, but I still wasn’t getting better so I had an IV put into my arm on September 11, 2007.
I am now 17 and I am still on IV antibiotics, and still have my headache. It has not gone away, ever. Not for a second. I have joint pain, insomnia, neck pain, and some cognitive problems due to brain inflammation, which makes it hard for me to process and recall information, like for school.
Please help me spread this knowledge, I want to keep what happened to me from happening to others. please please pass this information along to everyone you know. that is the only way some of us will receive the help we need.
I am a figure skater. I started almost 2 years ago. I have had lyme disease for 2 and a half years. I started skating in order to make myself feel better. I am now working on landing axel and double loop
Just thought you guys could watch these videos, they really hit spot on what is wrong with me, and maybe if you have friends or family with some of the same symptoms you can tell them to get tested. It seems like everybody knows somebody who has had lyme. The serious threat occurs if you are infected with lyme and you do not catch it within a week or two. In my case, it took two years. In another woman's case, 22 years. I know someone who has had lyme 4 times, but is fine because each time she caught it within a day or two and was fine.
http://www.youtube.com/watch?v=em9OeiLkHUQ - this is a video I made a while back.
these will give you more information if you're interested.
http://youtube.com/watch?v=mpB287Yx9iQ -this one especially I can completely relate.
http://youtube.com/watch?v=-5C83YS1LLE
http://youtube.com/watch?v=cCB6ezBzSMY
please. get the word out. I don't want anyone else to end up like me. This is something that I have to live with every single day, so I am extremely passionate about keeping people from being sick like me, so sick that sometimes I can randomly not walk. Like now.
just a few of the many symptoms could be:
which is why it is called the great imitator. fricking lyme, you suck.
Another problem is testing. some labs will say you tested negative, when you really could be positive, if you have less than 5 lyme bands react. I had 2 and it was negative the first time, and a year later, at the right lab, it was definitely positive.
And the sad thing is, all of these extreme cases, could have been prevented, had there been more knowledge of the disease, and had the testing sites actually told the truth about the results.
to find a lyme literate doctor (LLMD) go here: http://flash.lymenet.org/ubb/ultimatebb.php?ubb=forum;f=2 there is also lots more information on there too.
My Story:
I was 14 when I started high school in September of 2005. I had just gotten my braces on, was a goalie on the soccer team and I was getting top grades, straight As. However, on December 16, 2005, I was in the middle of watching a movie with my friend when I got a very painful headache. I tried to ignore it but the pain was so bad, so my friend went home and I went to sleep, hoping it would be gone in the morning. It wasn’t. After a week of head pain so bad that I could not concentrate in class, or even do my homework, we went to the doctor and he gave me a shot of Cortisone. That made it worse. In January 2006, my mother took me to a neurologist. I had all sorts of tests taken and they could not find anything wrong with me.
They put me on some medication and said I would be better in 6 weeks. I wasn’t. I started figure skating in April as a way to escape from my pain. I have gotten pretty good, but it’s hard when you have no energy to jump and spin. It is so therapeutic though, and I love it. Anyway, we saw a head and facial pain specialist who thought he had found the cause of my problems. I had to get my braces taken off (not a fun occasion) in order for them to be able to do the therapy. After a year, he injected my facial tendons 12 times over two weeks. Eight outside my mouth and four inside, he said that 99% of the time it made everything better. It didn’t. It made my headache even more painful than it had
been.
For a year and a half my grades went from As to Cs, I had to quit soccer and we had no idea what was wrong with me. By chance one day in May, my mom bumped into one of her friends and was telling her about my symptoms. The friend that was with her interrupted and told her that all of my symptoms sounded like Lyme disease. She had lived with it for 10 years. I had been tested for lyme in 2006, but it came back negative so we had dismissed that possibility. The friend said that most labs will tell you it is negative if you don’t have at least five lyme bands react, but you can have it if you only have one react. She said to get a copy of the results and check, and I had two that reacted. So we made an appointment with a doctor whose office was coincidently only 10 minutes away from our house. She ran a whole bunch of tests in order to rule anything out, and sure enough, I was definitely positive for lyme. This was in June 2007. I started oral antibiotics and took those for 2 months, but I still wasn’t getting better so I had an IV put into my arm on September 11, 2007.
I am now 17 and I am still on IV antibiotics, and still have my headache. It has not gone away, ever. Not for a second. I have joint pain, insomnia, neck pain, and some cognitive problems due to brain inflammation, which makes it hard for me to process and recall information, like for school.
Please help me spread this knowledge, I want to keep what happened to me from happening to others. please please pass this information along to everyone you know. that is the only way some of us will receive the help we need.
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